Dan and Jonathan, are identical twins, born May 2015 just in time to be a wonderful wedding anniversary gift. After almost two months in the
intensive care unit (NICU) and endless medical tests to explain why our health twins have breathing issues while they sleep, the life changing diagnosis arrived – Dan and Jonathan have CCHS. After 4 intensives and hard months in the NICU, Dan and Jonathan were released to go home for the first time. Needless to say, we were all very excited.
Dan and Jonathan are ventilated while they sleep with noninvasive methods – they wear ventilation masks overnight. Even though every night brings a new adventure, and there are nights that bring us difficulties and fear, Dan and Jonathan taught us that CCHS is just a small part of who they are. Our Dan and Jonathan are happy kids who smile from the moment they wake. They like playing together and with their toys and most importantly, our boys constantly make us all smile back at their happy smiling faces.
We thought we knew what love was, untill Dan and Jonathan came and thought us what it really is.